our fitfth day, our last day here.
Silas did so amazing today! You’d think by day five he would be so tired and warn out...and while he his tired you could tell he was still so present in his sessions. Wow, what a difference from January in FL...he was still so lethargic then, he still had all those nasty toxins from all of the seizure meds he had taken for his first year of life, he body was just still so resistant to the therapy because of the brain trauma. This conference he is so present during his therapy, he is tolerating his tummy, melting into the table and letting his brain rest. And he was so vocal all day! You can tell a huge difference in his ability to focus, to make eye contact when people are talking with him, and to really looks at their faces and study them. There was so much reciprocal vocalization between us, especially between him and his Dada.
His first session he had tactile with Amy. Matt was lucky enough to be treated at the same time as Silas and experience some tactile with from of the therapists in training. Silas did great with Amy, all he needed was the music from his ipad signing time show, he actually rarely needed the visual from his ipad all week, huge difference from January...he needed a visual flashy distraction for every single session, which of course is not the best for his brain, he is able to take in the therapy so much better without the visual stim. But of course he did need his light up sound toys a lot, be we tried to turn them off when he didn’t need them, and towards the end of the conference the music was almost enough for him to stay calm during his sessions. So that in itself is a huge difference. Dr. Masgutova even liked one of the songs playing so much that she asked for us to email where to find it to her. She says there are some singers that have a certain calming tone to them, it really does calm him right down. Nice to know that she approved his music.
Our last session of the day was neurostructural with Svetlana’s Nephew Elvin. We feel so lucky to have gotten on his team for conference, he is definitely a genius and a healer like Svetlana! At only 22 years old he is doing incredible work for these kids! He was so professional and so effective with his work. Our last session with him was awesome. He showed us incredible easy techniques to get Silas’ feet to relax, his feet are so cramped up with his spasticity, so much so that his second tow is often hidden and pushed down under his other toes. It is so hard to get it to come up at the same level but Elvin did this for his toes within 30seconds!!!! He showed us how to do this for him at home, he said the more we work with it the better it will get. I mean...it was magical! His once cramped up feet were flat! Then the work he was able to do with Silas on his stomach was amazing. Silas was happy, and vocal, ON HIS STOMACH!! Amazing!