Hey there Saga fans!
We are finally home and resting up from our long ten day adventure! And boy does it feel good to be home. Something about your own bed just makes you feel so great! Although I have to say the accommodations were amazing!!! And when I say my own bed, I mean to say Silas' because i've had to sleep with him since we've been back due to his sickness. It does of course help that his bed is a queen size bob-o-pedic so i'm still sleeping on a cloud! I want to fill you guys in on our last day in Orlando. We had Silas' therapists come up to his room for treatment since he was running a high fever and acting very sleepy and out of it. He did so amazing considering his condition. I think that he may have aspirated during his detox and may or may not have thrown up and stretched his nissen fundoplication because he's technically not supposed to be able to throw up! Eeeek! I will fight to not have another nissen surgery done if this is the case, because through MNRI I have learned many different techniques to help with reflux. The doctors said usually after the second nissen they would do a more invasive surgery and if it is possible I will fight to not have this done. Especially since it involves detaching the stomach or something to that crazy extent (I sound like I have no idea what i'm talking about but I just remember it was intense and I wouldn't want to subject Silas to it). In the end I will always do whatever is best for Silas though. Silas did really well his last day! He perked right up for sessions and even crawled a little! I learned more techniques for the MNRI programs that I still had questions about. There is so much information taught to you and given to you at a family conference compared to the mini clinic we attended in October 2013. I was so tired and exhausted by day 8 that it was hard to participate and learn but I pulled through and did my best! I feel so much more confident with my home program now and I am so excited to start! We cannot apply MNRI methods for 7-10 days because the body is integrating and needs rest. It is so hard not to apply any of the method! You get so used to doing it and so comfortable, and have the mind set that everything you are doing will only help him more, so it is hard to shut your brain off!!! I need rest too though! I have been sleeping whenever Silas sleeps to catch up on my rest so by next week I am ready to start his home program!!! Half way through Day 8 they held a closing ceremony for all the kiddos! It was so inviting, energetic, and so fun! Each kiddo got a medal and a certificate of completion. I can't wait to eventually fill his room with these medals! This therapy is a way of life! It is absolutely amazing!  We were so very blessed to have such an incredible team of therapists who gave their all during his sessions and were just as excited about his achievements as we were!  The conference experience has such an amazing energy about it. Surrounded by healing and growth, change, and struggle. All of the families were incredible. Meeting their kids and the parents was amazing. We met some wonderful people! And the best part about it was that we felt so comfortable and welcomed. We felt normal! Everyone shared a similar journey, and through that, we were all able to connect! Silas reached some incredible achievements during conference. I want to share them with you because many are ones that you may not notice without seeing him on a day to day basis. When we arrived in Orlando Silas was in a state of fear. Although he may have presented to be a happy kiddo, his body was in fear. When you experience an injury your body goes into survival and tries to protect itself from whatever is harming it. When Silas' brain injury occurred at birth his body went into fight or flight. And it stayed that way. It will continue to stay in the fight or flight mode until his reflexes are integrated and his body is told to break down the barrier. Although Silas received very early intervention after birth the general PT and OT were not enough to take his body out of fear. Which is why the healing process for Silas has been so slow. You just cannot deny this work when you see it face to face. You literally see the changes happen right in front of you! This work is smart, and this work is efficient. Instead of looking at Silas on the surface they dig deeper. The Masgutova Neurosensorimotor Reflex Integration program is the real deal! After just eight days of intensive therapy, 40 hours, Silas has made huge gains! He is 20% less spastic, his body is listening to the work being done and is less defensive to the therapy. He is much more calm overall. His hands are more relaxed even when in fists. His toes are less cramped. His facial structure has become more symmetrical. He is more vocal than before and making new sounds! His eye contact is being made at a deeper level of awareness. Silas has started to crawl! He is now trying to roll from his back to his belly, something he has never even attempted to try! The list goes on and on! This work is life changing! Another very cool thing about this work is that after a conference, the work will continue for four months!! So if we were to stop therapy for four months he would still be receiving the work! Obviously we are going to start his home program up ASAP, but it is a very amazing thing! I cannot wait to see what else changes on a day to day basis. I think when he starts feeling better we will really see the changes begin to happen. I took Silas to the doctors today and we put him on an antibiotic for possible aspiration pneumonia. Better safe than sorry, and we would rather not subject him to the radiation of a chest x-ray. We are familiar enough with Silas' symptoms and believe this will be best for his recovery. We were told the first time they detox is the hardest, after this it should get easier. There are just so many toxins this their bodies from all the medications and vaccines that it needs to be released. I am so excited to announce that tonight with the remainder of our Secret Santa donation we have secured a spot for the July 2014 Orlando Conference! This time we will be doing four days, and our buddies Mason and Dakota will be joining us for therapy!!! Their Mom's were so impressed with Silas' results that they couldn't pass up this amazing opportunity! I cannot wait to share this incredible experience with them! I will continue our blog to keep everyone updated on continued results, I hope you all enjoy reading about our experience and I urge you to spread the word if you think someone you know would benefit from this. No matter the diagnosis, anyone is worthy of this therapy, all ages! If you have any questions please comment below! I would love to answer! Silas is sleeping currently and we have had to adjust him five times already! He keeps scooting up to the top of his bed! Svetlana warned us this kiddo would be on the move, she was right! Goodnight all, keep posted for more exciting news to come on this little warriors progress! -Mama Brown

*Below is a slide show of our stay in Orlando! Enjoy!

Hey There,
A Day late on my Day 7 blog. It's 9:00am here in Orlando and we start our very last day, day 8 at 9:30am! Only trouble is...we have a...DUn DUn Dunnnn...sick boy on our hands!! Eeeekkk! Not Good! Our poor little fighter has been spiking a fever since yesterday and we are trying our hardest to control it with meds but the beast of the fever is fighting back hard! I don't know wether he is sick because of he intensive work and maybe his body is run down, or if possibly he may have aspirated when he was throwing up during detox. So hard to tell. Either way, he will still be treated today, it may be in our room away from the other kiddos instead of down in the therapy rooms, we shall see. I have been giving breathing treatments, suctioning, venting, the whole ordeal, but you can just tell Silas feels like crap...he is so out of it, and is grinding his time like it's his job, it's like nails on a chalkboard! Poor kiddo! Since Si has been under the weather day 7 was very mellow, but still very exciting. Silas slept through almost every session, peeping at us every now and again and still tolerating the work like a champ despite his condition. Today was a big learning day for us. Preparing us to go home with the correct technique for our home program. Learning the benefit of each technique and why it is or is not a high priority on his home program. It can be very overwhelming when you get your home program, scary looking almost, a bunch of numbers and words that look so foreign until you become familiarized with them. Thankfully I already have a very organized system at home and will be able to apply our updated home program to it. My home system was actually shared at a team meeting with all the therapists and they loved it. A couple of Mom's have asked me about it and I will be helping them organize theirs for home. We are very fortunate to have 4 MNRI therapists in the Portland, ME area and will have that support when we go home, where as some families have no one in their state to help with continuing therapy. Three of the Maine therapists even worked this conference! We are so lucky, and we are so thankful for that! I was able to learn a little more about certain terms and techniques today as I mentioned. I have a much clearer understanding of ATNR. This is the asymmetric tonic neck reflex. I had always thought of ATNR as a bad thing. It was presented to us as a bad thing by our child development company. "He's going into ATNR" they would say. I didn't understand why or what it meant, I just knew it wasn't good. Yes in some cases it isn't good, but thats only because it is not properly integrated. One of the achievements from yesterday was when we noticed Silas' ATNR is becoming properly integrated! This is huge. This will help with auditory and visual, etc. During Silas' archetype lesson I participated hands on and helped do Silas' "6 point star" and other exercises. I feel very confident in this work with him once I learn it properly. Silas' therapists, Sarah and I all noticed how present Silas is during his sessions now. His body is listening and responding to the work, where as Day 1 his body was so much in fear and crisis and he needed constant stimulus as a distraction from his therapies. His body and mind are finally connecting and he is really soaking up the work being done. We saw Svetlana (she floats around from room to room) and he had an awesome assessment! She called him a "champion boy" meaning that Silas responds so fast and so well to this work. She was so very impressed with his flexibility and spasticity decrease. Also his mind body alertness! She asked towards the end what the plans were for his feeding tube. I had explained the diet he was on and how he was recently switched to a soy formula and she says "no, no, no, soy bad for brain!" I knew it was, we have to correct this mistake the company made!!! I mentioned we would like to start feeding him orally soon and explained that usually kids are on the keto diet for three years until they start weaning them from it. She told me he could possibly be eating by mouth with intensive therapy far before three years from now and we explained that on keto you are able to eat orally and she was very happy about that. She believes in our kiddo! We will try oral feeding little by little when Silas' body heals from whatever has got him down. Svetlana gave a talk in the afternoon about preparing for home after the conference. Here is some really cool information. You are not supposed to touch the child with the MNRI technique anywhere from 5-10 days after conference. Their bodies need to rest and digest the information. She says "we do not promise you convenient child" and what she means by this is that Silas will be going through a ton of changes when he gets home, he will go through behavioral changes, physical, and it will not be easy at first. They are processing. Something really neat is that if you were not to apply any technique for 4 months after leaving conference, the work will continue for four months minimum! Obviously we will continue as that is best for Silas, but it just goes to show how incredible and intensive this works is! Svetlana tells us, "get ready" because Silas is not convenient child anymore! Meaning, do not leave him unattended, he will roll off couches, beds, and he is going to be on the move. Watch him carefully! I love that! So exciting!!! A really big tip Svetlana gives us is to be positive to our kiddos. To tell them they are safe with us, they are our friends, they are strong and amazing, and bravo to them!!! Always be positive. The moment you are negative, they will pick up on that. But at the same time do not allow them to whine, whine, whine. Joke with them and teach them to be present in this world. There will be tough times, but we need to teach our children how to get through those times with laughter and love, and hard work. She told us to let them work their bodies. For example if we are picking Silas up let him do the work. Do not always be there to support his head every time he is coming up from the laying position, or he will depend on that and will not learn to engage. Svetlana gave us a lot of nice technique to use during the transition period that will not harm the integration process. It is so interesting what the different reflexes and different parts of you body can do for you. For instance pulling on the thumb activates breathing. How do you know this!? I would have never even guessed. This work is so interesting and so smart! It is amazing the changes we have seen in Silas and despite his illness I cannot wait to see what our last day brings! They will be working on him up in our room today so we do not have to lug him around from room to room. He obviously needs his rest, and MNRi work is very well received when sleeping so that is a plus! Stay tuned for our Day 8 blog and continuing blogs about how he is doing after conference! Thank you all for reading! Here's to our last day of the MNRI family conference! Cheers, Mama Brown

Hey There!
Exhausted Mother here! What a journey this has been so far. I am going to fill you all in on days 5&6 of Silas' MNRI therapies. Big changes are happening and Silas' body is really soaking in all of the information. We have a completely different kiddo on our hands. Our once spastic, energetic kiddo who was constantly in chaos and fear is now so mellow and happy in his own body! All of his movements have become so much more purposeful, his eye contact is being made at a deeper level, and his CVI (cortical visual impairment) is improving by the day. I would have to say the biggest challenge we have come across during our experience so far has been the detoxing. With Silas' being non-verbal our only cues are his body language, his cries, coos, whines, etc. We do not know if his stomach is bothering him, we can only guess by the treacherous smells emitting from his body and the grumbles we hear from his tummy!!! Poor kiddo. His ketocal was also switched recently. The old manufacturer was bought out by a different company and our formula is now soy-based which is not good for his brain!!! We need to call them for a different option. His tummy obviously doesn't like it either, though it smells rather nice, like cake batter! Its just so hard, you have to think of every little thing it could be, is it the work, the detox, his teeth, the new formula, is he sick? What could it be!? He is a very smart kiddo and I believe with our home program and continuing intensive therapy his speech will come. Some of the specific progression he has made lately include his lessened spasticity. His body feels so dense now. He is so relaxed. His muscles even when excited are less tight than they once were just six days ago. His reflexes are now responding to some of the work. In the hands supporting position he will now push against our hand when giving the input instead of just caving in with no resistance. This will get him prepared for the quadruped position on all fours and many others. Silas' facial symmetry is changing. His face looks longer and more pronounced. His eyes are changing. I will be showing a before and after of his face and hands and feet on the eighth day. Even in the pictures below you can see changes. The pictures of Silas in his orange hat were taken on our free day, and the others were taken on day five of therapy. He just looks so different to me! Silas has become present in his sessions despite how tired he has been. Day 6 he did sleep throughout almost all of his sessions, but when awake was very focused and relaxed. When in the position to crawl he engages every time. His upper body strength looks incredible and so much more pronounced than Day 1. Silas will hike his leg up to push forward, but still needs help with support for pushing off with his foot. When he is more grounded in space he will do better with this. Bring it on Days 7&8!! We want to see what you have to offer for our little warrior! Stay tuned!!!
-Mama Brown

Hey There Everyone!
Sorry we were MIA for a few days, we are so emotionally and physically exhausted here! And on top of that my computer charger broke! No Bueno! So I will catch you guys up with all the progress Silas has made. I have to say he is a completely different kiddo! On Saturday we had our six sessions, and a start to one of our meltdown days. They said in our parent meeting that you should expect to see kids melting down on day three or four. He had meltdowns both days, but still did so amazing. On Sunday Silas did such incredible things. He was chosen by Svetlana for a demonstration in the morning in front of all the core specialists to show them new technique. She found the technique while they were in California last week. It is a technique that helps to open the fisted hands, and keep them from going back into their fists. Silas did amazing being demonstrated to them! And the technique worked! His hands have been so open! She also showed them a couple other techniques on him after. A move that is really going to help Silas with his spasticity. Instead of forcing his legs to bend if you pull down on the leg first and then push it up to bend it allows the leg to bend so much easier! Svetlana calls this "smart work" and she is absolutely right. We cannot force Silas into these positions. His body will allow it if done properly. Just like we should not try to pry his fingers out of the fists. Instead there is always a different pathway or neuro reflex to use to get the body to respond properly. After we had our demonstration we went to our first breathing class. We were able to smooth Silas' chest out to allow for easier breathing, help with reflux, and much more. Picture Silas' chest and rib cage to be like crumpled up paper or tinfoil. What was done in this session was incredible work. At the end it was if the paper or tinfoil was completely smooth now. His chest felt so flat. The whole look of it changed. This is going to be very important to learn this technique for help with his breathing and reflux issues. After breathing we went to Stephanie for tactile. We were trying to get Silas to engage during his session and we were playing around with trying to get him to say Mama. He said it, THREE TIMES!!! It was the most amazing experience, not only to hear him purposefully say it for the first time, but to share the moment with Steph our home therapist who helped to guide us into this direction of therapy! At the end of our session Silas went into meltdown mode again and we decided to take it easy in Archetype and work with him on his side on the couch. Silas brought his hands up to his mouth, which he never does, and CHOMPED down onto his finger! Ouch!!! This is so amazing though. For him to make that connection is incredible. He has now integrated the fact that he has fingers, not just a fist, and that his mouth is very powerful! Now that he has done that he will probably never do it again. He brought his hands up after and very nicely put them in his mouth and took them back out without chomping them. In repatterning we were at a parent meeting, but his therapist got him to calm down and have a very successful session. She had him crawling across the therapy table with her cues and help, and was able to get him into fetal position and stay in it without spasming out of it. This is huge. In oral facial Silas had a lot of his sucking and swallow reflexes worked on, and work on his eyes as well. The asymmetry of his face has started to shift so I am looking forward to taking our after pictures and comparing. Silas already looks so different then when we first arrived. He looks longer, and his face looks more defined. His feet are much looser and his toes less cramped. His overall personality and body language is so much more mellow and way less spastic. Silas had a very good neurostructural session to end our day and first four days for that matter. He really wants to crawl! And he had started this process!! He just needs some simple reminders and he will be off and running soon, baby proofing here we come! Although all these great things have been happening, let me tell you, this conference is in no way easy. It is emotionally, physically, and mentally challenging. This is 64 hours of therapy in eight short days. Not only are these kiddos enduring this intensive therapy, but they are also detoxing from it. Silas has been dry heaving, throwing up, achy, and very exhausted. He is such a trooper though. All of the toxins in his body are flushing out of his system, and he is changing by the minute. Thankfully Matt arrived Sunday night which was perfect for some much needed Dada time. Although when Matt arrived he still wasn't himself. He is a much more mellow version of himself. I cannot wait to see what these next four days bring, it is going to be amazing though, I know that for sure. We had a free day today to relax and reboot our systems and it was so necessary! Silas had a hard day still detoxing from the work. Very hot and cold and back and fourth with his emotions. But we had amazing moments in between the hard times. He went swimming with Mama and Dada and had an absolute blast, he is such a little fishy. He played with Dada and tried crawling a little, hiking his butt in the air, so cool! Now he is sleeping soundly and getting ready for another long day! Thank you to all who are following along with us on our journey, this is simply life changing and the most amazing and rewarding experience I have ever had. There is so much love and healing here with all these families and therapists. I am so grateful to be here. Here's to four more days of amazing life changing intensive therapy for our little guy! Goodnight all! -Mama Brown

Day two of MNRI camp got off to an inspiring start when Sarah read to me Silas' horoscope of the day. Normally I am very skeptical of horoscopes and such theories but this was something you could not deny the significance of. His horoscope read this:

This is so true! We have to be patient, there are amazing and wonderful things happening in Silas' body and brain right now and we have to wait and see when they will choose to bloom! This is all part of the MNRI journey. Sometimes you will see continued results weeks later from the therapy that was performed, we have to be patient and give the body time to interpret the new information. Some results are almost instant though, which is also wonderful to see! For instance, Silas has already shown changes in less then 24 hours! He is already more vocal, more aware, he is flexible and has a larger range of motion. When you pick him up he is less spastic and feels more dense. He is not as hyper extended as he was the first day. His hands are less fisted, and his moro reflex is becoming more integrated. He is taking this therapy like a champ! And his brain and body are soaking up all the amazing information! I cannot wait to see what tomorrow brings! Silas wants to crawl so badly. He has started to make the movements, they are just very premature and very choppy. His right side is much weaker than his left, being that it is very spastic and tight, so it is less integrated. To help strengthen the right side they will actually be focusing on using his left side which is the stronger side and continuing to strengthen it so it can then begin to teach the right side. This confused me at first. My logic was that we would need to focus more on the right side since it was so weak and behind, but it makes perfect sense that you would use the strengths you already have in your favor and improve from there. Silas did very well in his archetype session allowing three sets of hands on him at a time to really lengthen his body and stretch it out. His hands were also together at midline during this session which is very rare for him! Usually his ATNR will kick right in and he will be all over the place, but you can tell something must have integrated because having his hands at midline is tough for him with his spasticity. If this doesn't make sense to some of you reading, no worries, just know he is doing amazing, I am still learning all the terms and lingo as well, it is very overwhelming and confusing, but what I know for sure is that Silas' body is receiving such amazing work and he is absorbing it like a sponge!!! I heard through the grapevine from Silas' therapists that when Silas was brought up in the core specialists daily meeting that everyone was very impressed with how well he is doing. Dr. Masgutova said in meeting that she was very impressed with the amount Silas' spasticity had decreased since we had last seen her in October. She hadn't seen a response that fast in very many cases and expressed that we must have been doing very great work with him at home to get to this point with him. So encouraging to hear this as I thought I was slacking at home!!! Now I have the drive to do even more when we get back! It is very gratifying to see instant results and is so rewarding as a parent who is trying daily to be the best mother, therapist, nurse and caregiver to such an incredible boy. I cannot wait to see what tomorrow brings for Silas! I do have to say there is the cutest little boy in one of our sessions we do through out the day. He is a little older than Si and presents very similar to him. The difference between the two is that he is verbal. It is very interesting to see him struggle with the gross motor skills like trying to crawl, sit-up, or hold his head up all while saying "I want toy." I picture that Silas must want to say the same exact things but just isn't there yet. It is like looking into the future, that maybe soon with this therapy his speech will come like that little boys has! So very cool to see. The pictures I posted below are pictures that Sarah captured the first night we arrived in Orlando. I wanted to capture specific features on his body that are not well integrated yet. You can see his hands are tightly fisted, his feet turned in and his toes cramped from spasticity. His face shows misalignment and appears to be almost puffy. And his head of course small due to his microcephaly from his brain injury. I wanted record of these because I am 99% positive at LEAST one of these features is bound to change during our time here and I want to be able to compare the two to show everyone how amazing this therapy works in these little bodies. Thank you for reading, as day two comes to an end I am just so very thankful we have the opportunity to be here. Here's to a good nights sleep and "silent healing" as his brain interprets all that has been integrated during our first two days here! Goodnight, Mama Brown

Wow! What an exhausting but incredible first day at camp. I can't even begin to explain all that happened today and what we experienced, but I will try my very best to reiterate it for you all! (Also...i'm exhausted so forgive my writing skills!) We woke up and I was right on time getting all of Silas' meds for the day ready, made up his formula, showered, woke him up, changed him, and got him dressed and ready for the day. It is so different taking care of Silas by myself, without his nurses help. I know that sounds kind of strange seeing as i'm his mother, but i've become dependent of his nurses to help me with his care, it can be tiring and trying at times, and very repetitive, but I would of course go beyond limits for this kiddo! We rolled on down to breakfast, grabbed a quick bite to eat, and then ventured up to our first session. We started out with Archetype. I don't expect you to know what this is, as I am still learning myself! What I know about Archetype so far is that it brings full body awareness allowing Silas to see that he has a central spot in his body that leads out to all extremities. It gives him a central point right below his belly button and extends out to his fingertips and toes and tip of his head. A lot of kiddos with brain injuries aren't aware of that fact that they even have arms or legs, sometimes, if the neuro pathways are being interrupted, not allowing connections to get through to their hands or feet. Silas I believe is somewhat aware, but it is very premature still. He did excellent in his first session with very little to no whining. Mornings are very tough for him, and I was imagining the first few sessions to be very rocky, but he proved me wrong! His therapist was so very kind and gentle, he was very comfortable with her working on him. Our second session of the day was repatterning. This session was focusing on resetting Silas' body and neuro relfex patterns. When the brain injury occurred in Silas his body went into a fear and fight or flight mode mixing up the brains natural reflex patterns and confusing his system. For instance a therapist could be trying to check one of his reflexes and the wrong one will activate. This session will help Silas re-set his system so his reflexes are no longer confused. He did amazing in this session as well. We loved our therapist and learned a lot of new material! Third session was focused on oral and facial. She did a lot of work in and around his mouth, trying to awaken the reflexes for suck and swallow. She also applied some cranial sacral work as well as other techniques to try and shift the asymmetry in his face. On to session four still doing great we walked into his neurostructural session when he lost it...he was finally so overtired and needed a nap. Our therapist was kind enough to send us to lunch early and come back early from lunch to get the rest of his session in. In the mean time Silas hunkered down in the fuffy hotel bed to nap! And boy did he need to nap. He had so much new information put into his body in just 4 hours!  He needed to sleep and reset his system for the second half of the day. And that he did. He went down almost immediately, and I unfortunately had to wake him up for his next session. It was time for his proprioceptive and cognitive (prop&cog) session. This session was awesome, he did a lot of rolling on the ground with motivation waiting at each end for him to roll to, his ipad and his star toy, cant go wrong with those items! He did great rolling and seemed to love it! We had a short break after that session and finally went to our last session of the day which was with his home therapist Stephanie who is working the conference! She did tactile on him until it was time to go downstairs to get his assessment from Dr. Masgutova! We walked in and Dr. Masgutova remembered Silas right away from the mini clinic we did in October. We had an amazing assessment! She found that Silas' spasticity had reduced by 20% since seeing him in October 2013. Silas also had a much wider range of flexibility in his body and his awareness to his surroundings had improved. He was so alert and his tracking for objects was spot on. Dr. Masguvota tested Silas' leg cross flexion which is a reflex that brings each leg up by hitting a spot on the opposite side of the body (forgive me MNRI gurus if i'm wording this wrong). She found that Silas had created a new neuro pathway in his brain for this reflex and it was functioning amazingly!!! What a milestone!!! She said so much more during his assessment which I could not quite understand (she is polish afterall) but we will review it tomorrow and I will be able to ask many questions! I cannot wait to see what tomorrow brings. Silas did incredible and I am so impressed with how hard he worked with only having a 40 minute nap! 6 hours of therapy and he passed with flying colors! He is tucked in tight and his brain is working away filing his new information from our day. Good night and here's to a restful sleep to all! 

Hey There Saga Fans,
I am going to try SUPER hard to update you every night of our time here in FL! We are going to be very busy with the conference but I want to keep a very detailed blog about our time here. Not only to share will all of you who made it possible for us to be here, but to remember how far we've come on a day to day basis with this intensive therapy. Tonight I will update you all on how our flights went! 
I was SO nervous to fly with Silas. I had no idea what to expect. The fact that we had to check all of his medications and bring on his special formula, I was so nervous I would forget something or do something wrong! I made my lists and I checked them twice. Heck! I checked them over probably ten times! SO very afraid of forgetting something! I will say, I don't think I forgot anything! Knock on wood, though...who knows, right? Everyone always forgets something! Well anyway, driving to the airport I was going over the lists again and again in my head and finally I had to make myself shut my brain off and focus on that fact that we were about to cross a very big milestone! Silas' first time flying! Of course I had worries, like getting through security, but thankfully all went well in that department! I didn't even need to show proof of prescription for anything and we got right through no problem. We all hunkered down by our gate and waited. It was delayed by half an hour, but was no big deal. When it was finally time to board they let us on first so we were able to get all settled. We used his car seat on the plane for positioning and it worked out very well! I was afraid of his ears bothering him since he can't swallow on command or chew to relieve the pressure, but his ears didn't seem to give him any trouble. Silas, as we all know is an adrenaline junkie so he LOVED take off and landing. He was happy the entire flight cooing and kicking and didn't cry once! We got off our flight just fine and had a nice short layover in Philly. He took a short cat nap...and I mean short, like 20 minutes short! I gave him an ativan to see if he would sleep more but all it did was mellow him out for the next flight. I personally think he could've done without the ativan but also it didn't hurt to give it to him. He stayed up the entire flight from Philly to Orlando and again did great! No crying! Landed in Orlando and took the shuttle to our resort and checked in for the conference and here we are. In our lovely 3 bedroom suite in beautiful Orlando, Fl awaiting 6 hours of therapy tomorrow for our first day of COnference!!! I have so many emotions about this. Nervous, curious, excited, anxious, happy, blessed! I can't even begin to explain what we are about to witness in these next few days of the first half of this amazing conference but I will be sure to update all along the way! I welcome you to ask any questions, leave comments, and pray for amazing results and healing! We're finally here! I am so grateful! So for now goodnight, until tomorrow night when I update you all after our first six hours of therapy on our first day here at the MNRI Family Conference!!! 
Goodnight all, 
Mama Brown