We are finally home and resting up from our long ten day adventure! And boy does it feel good to be home. Something about your own bed just makes you feel so great! Although I have to say the accommodations were amazing!!! And when I say my own bed, I mean to say Silas' because i've had to sleep with him since we've been back due to his sickness. It does of course help that his bed is a queen size bob-o-pedic so i'm still sleeping on a cloud! I want to fill you guys in on our last day in Orlando. We had Silas' therapists come up to his room for treatment since he was running a high fever and acting very sleepy and out of it. He did so amazing considering his condition. I think that he may have aspirated during his detox and may or may not have thrown up and stretched his nissen fundoplication because he's technically not supposed to be able to throw up! Eeeek! I will fight to not have another nissen surgery done if this is the case, because through MNRI I have learned many different techniques to help with reflux. The doctors said usually after the second nissen they would do a more invasive surgery and if it is possible I will fight to not have this done. Especially since it involves detaching the stomach or something to that crazy extent (I sound like I have no idea what i'm talking about but I just remember it was intense and I wouldn't want to subject Silas to it). In the end I will always do whatever is best for Silas though. Silas did really well his last day! He perked right up for sessions and even crawled a little! I learned more techniques for the MNRI programs that I still had questions about. There is so much information taught to you and given to you at a family conference compared to the mini clinic we attended in October 2013. I was so tired and exhausted by day 8 that it was hard to participate and learn but I pulled through and did my best! I feel so much more confident with my home program now and I am so excited to start! We cannot apply MNRI methods for 7-10 days because the body is integrating and needs rest. It is so hard not to apply any of the method! You get so used to doing it and so comfortable, and have the mind set that everything you are doing will only help him more, so it is hard to shut your brain off!!! I need rest too though! I have been sleeping whenever Silas sleeps to catch up on my rest so by next week I am ready to start his home program!!! Half way through Day 8 they held a closing ceremony for all the kiddos! It was so inviting, energetic, and so fun! Each kiddo got a medal and a certificate of completion. I can't wait to eventually fill his room with these medals! This therapy is a way of life! It is absolutely amazing! We were so very blessed to have such an incredible team of therapists who gave their all during his sessions and were just as excited about his achievements as we were! The conference experience has such an amazing energy about it. Surrounded by healing and growth, change, and struggle. All of the families were incredible. Meeting their kids and the parents was amazing. We met some wonderful people! And the best part about it was that we felt so comfortable and welcomed. We felt normal! Everyone shared a similar journey, and through that, we were all able to connect! Silas reached some incredible achievements during conference. I want to share them with you because many are ones that you may not notice without seeing him on a day to day basis. When we arrived in Orlando Silas was in a state of fear. Although he may have presented to be a happy kiddo, his body was in fear. When you experience an injury your body goes into survival and tries to protect itself from whatever is harming it. When Silas' brain injury occurred at birth his body went into fight or flight. And it stayed that way. It will continue to stay in the fight or flight mode until his reflexes are integrated and his body is told to break down the barrier. Although Silas received very early intervention after birth the general PT and OT were not enough to take his body out of fear. Which is why the healing process for Silas has been so slow. You just cannot deny this work when you see it face to face. You literally see the changes happen right in front of you! This work is smart, and this work is efficient. Instead of looking at Silas on the surface they dig deeper. The Masgutova Neurosensorimotor Reflex Integration program is the real deal! After just eight days of intensive therapy, 40 hours, Silas has made huge gains! He is 20% less spastic, his body is listening to the work being done and is less defensive to the therapy. He is much more calm overall. His hands are more relaxed even when in fists. His toes are less cramped. His facial structure has become more symmetrical. He is more vocal than before and making new sounds! His eye contact is being made at a deeper level of awareness. Silas has started to crawl! He is now trying to roll from his back to his belly, something he has never even attempted to try! The list goes on and on! This work is life changing! Another very cool thing about this work is that after a conference, the work will continue for four months!! So if we were to stop therapy for four months he would still be receiving the work! Obviously we are going to start his home program up ASAP, but it is a very amazing thing! I cannot wait to see what else changes on a day to day basis. I think when he starts feeling better we will really see the changes begin to happen. I took Silas to the doctors today and we put him on an antibiotic for possible aspiration pneumonia. Better safe than sorry, and we would rather not subject him to the radiation of a chest x-ray. We are familiar enough with Silas' symptoms and believe this will be best for his recovery. We were told the first time they detox is the hardest, after this it should get easier. There are just so many toxins this their bodies from all the medications and vaccines that it needs to be released. I am so excited to announce that tonight with the remainder of our Secret Santa donation we have secured a spot for the July 2014 Orlando Conference! This time we will be doing four days, and our buddies Mason and Dakota will be joining us for therapy!!! Their Mom's were so impressed with Silas' results that they couldn't pass up this amazing opportunity! I cannot wait to share this incredible experience with them! I will continue our blog to keep everyone updated on continued results, I hope you all enjoy reading about our experience and I urge you to spread the word if you think someone you know would benefit from this. No matter the diagnosis, anyone is worthy of this therapy, all ages! If you have any questions please comment below! I would love to answer! Silas is sleeping currently and we have had to adjust him five times already! He keeps scooting up to the top of his bed! Svetlana warned us this kiddo would be on the move, she was right! Goodnight all, keep posted for more exciting news to come on this little warriors progress! -Mama Brown
*Below is a slide show of our stay in Orlando! Enjoy!