Silas' MNRI Blog! Follow our healing journey attending Masgutova Family Conferences and how they have changed our lives!
Second Day of Therapy
Our day started out great with a tactile session. He had two therapists working with him, his regular tactile therapists and a therapist in training. We could tell he was a little bit sore today, and we are guessing that it was from his Neurostructural session from the day before because his therapist for that modality does very deep work. He was especially tender in core tendon guard area near his pectorals. They showed us a Babinski point in the foot that could be used for pain troubles. We worked on that to help from some of the pain he was feeling, and we also oiled him up good with his "pain" management oils! Silas was very talkative and present during this session, he was interactive and making great eye contact. He had his hands in midline a lot again during this session. They also worked a lot on his fingers to help wake up the reflexes in his hands to show him he has five different fingers instead of one fisted hand. His left hand opens up really well, but his right hand is delayed.
Next we had our Evaluation with Svetlana! It was so amazing to watch, I always say she is like some sort of magician to me, it is as if she has a map to their bodies, she knows all the ins and outs of how to work with them, what they need most help with, and what they are dong well with. It is so fun to watch and so interesting to see and hear how much has changed even just since October when we saw her last. I will write a separate blog just on our evaluation, because that in itself is just so much to process! But we will be getting our new home program tomorrow which will be amazing to see!
For our Neurostructural session Silas was treated for about 35-40 minutes instead of the full hour due to having his evaluation with Svetlana in place of that session. Elvin our therapist was so kind and worked through our break to give him as much work as he could get into him before it was time to go onto our next session. We did a lot of work on his stomach. Almost the entire session infact...WOW! Just hit me...he usually strongly dislikes his stomach, but he really did spend at least 30 minutes on it, content! He was on his elbows and bearing weight through them. And his head control was also amazing. He gave the best little smiles too, the picture at the top of this blog post was from that session. He was just so content. He did so well tolerating the work even though it was very deep work and he was already sensitive from the day before. I am so proud of him for how well he did in this session.
We had re-patterning with our lovely therapist Theresa after our session with Elvin. The polish therapists are so incredibly amazing to work with but they most definitely do not fancy Silas' iPad addiction! Haha! We have been very surprised though with him since he has been here, he hasn't needed it nearly as much as other conferences and he has been very interactive with us! It is something we are constantly working with him on...breaking the addiction (haha) but like anything else, it is a work in progress! We normally fall back into using the iPad during times when Silas gets sick and then it's hard to break him from it. Our session of re-patterning we only used music from the iPad and no visual and hid it so he wouldn't see it but would still sense the comfort of his precious iPad! They didn't even want us using his toys either, but instead face to face interaction, which he surprisingly loved and participated in! I was able to do some hands on technique work in this session and learned how to properly do the leg-cross flexion technique for Silas which is a high priority for him and a tool that will help when he starts crawling. We also worked on his hands supporting technique another high priority for Silas and spinal gallant and perez as well. All of these techniques are key components to the beginning stings of crawling, and so much more!
We took a break after re-patterning and had a much needed lunch! We sat with our buddy Ben who we met last year at this conference. He is so cute with Silas. Here they are smiling away! Silas is Mister Serious though! Hha, tired tired boy!
We had archetype after lunch. Silas loves his archetype therapist. He is always so good during his session with her and loves the work she does! We worked on the homologus reflexes which are the basic reflexes that infants are born with and are very important for everyday skills such as crawling, scooting, head righting and so much more. Archetype is so important, it is the foundation for all reflexes to build off of. When reflexes within the archetype program are integrated, it creates a foundation for all of the other programs and their reflexes to build from. When you have a solid foundation, the reflex patterns with be more developed and not all over the place. This program has a lot of top priorities within it for Silas' home program. Due to his neurological disorder he never developed the foundations that every typical/healthy infant develops. He did some great work grounding his feet while on his back and pushing off. If you know Silas, you know he LOVES to kick his legs...but he cannot find the ground with his feet flat on the ground. He will hit his heels while kicking but he will never ground himself. We worked a lot of this because this will help him with scooting, and full body awareness also, realizing he has feet at the end of his legs, he has five toes that can be used to grasp, he can use his feet purposefully and find a way to get around, but we just really need to work hard with him to achieve such skills. Archetype is just a very fun program, one of my favorites.
We went to Oral/Facial Visual/Auditory Program next with Lucy! Silas has such a neat bond with her! They chat up a storm, it is SO fun to watch! I cannot believe, I was able to step aside for once and not have to be entertaining him 24/7 while Lucy was working with him. He is just so much more receptive to the therapy this camp, even more so than DC, and an absolute difference from FL last year! Silas was so chatty during this session, saying "I go" and "Hi" to us. He let Lucy do some awesome work in his mouth and she was also able to work a lot on his swallow reflex. We had asked Dr. Masgutova in our Evaluation why he may be having such a hard time GI wise and throwing up when we pick him up, and she mentioned that his swallow reflex needs a lot of work, she was going to show Lucy some things to do with him specifically for his swallow.
With ended the day with our home therapist Steph and he was happy to see a familiar face after such a long day! We did a lot of work with spinning and rolling. Spinning is not what you may think it is for Silas. For Silas spinning is on the ground, and looks like rolling but instead your arms are up straight out above your head. It is a harder one for him due to the tone in his arms, but we were able to spin the length of the mat and he did a wonderful job! We did STNR as well which is a move that is on all fours which will help his hands to open up more and more. All in all an amazing day! I am just so proud of how well he is handling the work this time around. He has so much strength it blows my mind daily! My strong strong hard working guy!
Another awesome day in the books! Heres to 6 more days!!! Cannot wait to see what else happens for our smart and strong guy! Heres him and another buddy we are housing with after they rocked out therapy. They were playing action figures (a first for Silas) and he wouldn't let go on the tiny little light saber, haha!